Weblog
Monday, 03 October 2011
-
Snapshots of life
I've recently been asked to create a slideshow for my cousin's wedding. Its the 3rd slideshow I've done for events and I think I'm starting to get the hang of it. This task given me a chance to reflect and has made me particularly thankful that one of my dad's hobbies is photography. While working on the slideshow for my cousin, he has had trouble locating many photos of his (and his bride's) childhood. Theres a large gap of years that he doesn't seem to have any photos. If/when I ever get married, I know the issue won't be finding enough photos... It'll be trying to weed through the thousands of photos and trying to decide which ones to use.
While searching for photos of my cousin within my dad's photos, it was like a treasure trove. I found photos of my childhood that I had never seen. I can't even imagine how many more photos I'll find.
That leads me to think of how some people don't like taking photos. They're missing the opportunity to preserve the memories for the future, and perhaps their children. In the digital age, its so much easier to take and save thousands of photos. As I'll become an uncle for the first time in about 1.5 months from now, I've come to the conclusion that I'm gonna try and take as many photos of the lil' tike as I can.
Also.. must find time to try to scan all those photos in and tag 'em. Does anyone have recommendations on a photo management program?
Thursday, 29 September 2011
-
Hidden meanings?
Is there a hidden meaning behind any of the following?
"I don't think I deserve you"
"I'm not as good as you think I am"
I've been told these things before, but was just told this again a few minutes ago... After which I'm told not to think too much about it. I know I'm leaving a lot of context out, but is there any hidden meaning behind this? Should I be concerned?
Sunday, 17 April 2011
-
Hello World -- A "quick" recap
Seems I've been MIA from Xanga for quite a while now. Just over 10 months since my last post. Things have been very busy as of late!
Its about 2AM so I'll just quickly recap whats been going on in my life since my last post:
- Went on two trips/cruises.
- European trip/cruise
- Paris -> Venice (board cruise) -> Dubrovnik, Croatia -> Athens, Greece -> Ephesus (Izmir), Turkey -> Nafplion, Greece -> Venice (disembark) -> Paris
- The trip was pretty fun. Every day was pretty adventurous. Every city had its own unique thing to offer. Due to all the walking, we opted to bring a wheelchair for me on the trip... Oh did we beat that thing up! Trekking up and down the ruins made my behind rather sore.. But besides not having to walk (and possibly fall flat on my face), the great thing about using a wheelchair on the trip was that admission was free to most places (for me and a companion!).. I was pleased to see how accommodating most places were.
- Paris, France - On the day we visited the Arc de Triomphe and other sites, there was a terrorist alert. One second we see tourists atop the Arc de Triomphe... the next, Paris police in tactical gear swarm the area and evacuate the site. We visited the Eiffel Tower, Louvre, war museum, and some other places.
- I expected the French people to be rude or anti-American... I was pleasantly surprised. The Parisians were the friendliest Europeans we encountered on our trip!
- We had the best meal of the trip on our very last day before we departed. It was a Chinese restaurant near the airport... Yes, we flew all the way to Europe and ate Chinese food... Maybe it tasted extra good because we were all hungry? It was probably the most reasonably priced food we had.
- Venice, Italy - You can't help but feel a bit romantic in the city. With the gondolas, music, and sights... Its a breathtaking view. If you have trouble getting around, as I do, this is not the city for you. In the touristy area, there are no vehicles. The only form of transportation is boats. Getting to and from the area requires either a ferry or water taxi. The water taxi to the airport cost us about 100 euros!! We expected the Italian food to be great but came away a bit disappointed. Expensive and small portions (compared to what we get here in the states). We tried various pasta dishes, and pizza.
- Dubrovnik, Croatia - What a beautiful little touristy area! This was a tendering port meaning the cruise liner docked out at sea and shuttled guests to/from the land by shuttle boat. The place they dropped us off seemed like a castle. There was a wall that enclosed the area which you could walk atop of. Inside this area, there were various little shops, street vendors, and churches. When it gets a bit dark out, the way the light hits the smooth marble floor (I think it was marble) made it look very beautiful.
- I was deprived of Internet... fortunately I was able to find an unsecured wifi spot where I surfed online for about 2 hours while waiting for family to get un-lost
- Places charge a euro or two to use the bathroom!
- Athens, Greece - We hired a private tour guide that drove us around various sights. Visited the ancient coliseum, Acropolis, and ... I honestly can't remember, its been about 6 months! Seemed like a bustling city... Found it interesting that the ancient ruins were scattered all around.
- Ephesus, Turkey -- I don't remember too much about this city, just that our private tour guide wasn't all that friendly or good.
- Nafplion, Greece -- ditto. Went with the Cruise excursion... it was rainy, and rather uneventful.
- Caribbean Cruise
- New Orleans, LA (board cruise) -> Costa Maya, Mexico -> Belize City, Belize -> Roatan, Honduras -> Cozumel, Mexico -> New Orleans, LA (disembark)
- New Orleans - Went to eat beignets (french donuts) at Cafe du Monde, and po'boys (essentially sub sandwiches)... Visited the french quarter, Magazine St., and some other local spots. Went on a gator boat ride only to see two baby gators... Went to this restaurant at the Hyatt (or was it the Hilton) that had angel hair pasta with oysters in cream sauce... For about $20, you won't believe how many oysters was in that one dish! I lost count, it seemed like there were over 30 oysters in there... Besides that, it was unbelievably buttery rich... Also visited this chain restaurant that seems to be famous for their oysters. Didn't get to eat any crawfish as it wasn't in season...
- Belize City, Belize - Went on a private van tour through Belize... Looks like a very poor run down city. The tour guide said that most of the small convenience stores were owned by Chinese... and that all the stores are fenced up because of frequent robberies.. so they sell things out of a window.
- Costa Maya, Mexico - Apparently Costa Maya is just the name of the tourist area.. We went on a dune buggy ride outside the touristy area and to a private beach where were chilled for about an hour. Very relaxing...
- Roatan, Honduras - Rode on one of the pedal boats... very disappointing as you're very restricted as to where you can go and theres not much to see...The whole area appears to have been built just for tourists from cruise ships...
- Cozumel, Mexico - Beautiful boardwalk... Tons of tourists, lots of shops.. Ate at a restaurant called Senor Frog (I think thats what it was called)... music was way too loud... and they have balloon artists... The balloon artist created some "pointy" hats for some guys, and "holes" for girls... Even with kids there... Guess they have different standards?
- Been busy working on a big project renovating a hotel. At first it was going to be a 1-month job (with no pre-planning!)... It has turned into a 6.5-month job... When the project first started, we were in such a rush to complete it that we worked 7 days a week (including Christmas, New Years, etc.)... I love keepin' busy and would much rather feel productive than be as bored as I was.. Its been about 5 months now and I'm starting to get burned out. Must...keeep...going...
Hmm, what was supposed to be a quick recap took over 40 minutes to type up... I'll consider posting up some photos if I have time... then again, the few of you that read this have already friended me on FB so you can check it out there or on my gallery. :P
Til next year! :P
Friday, 11 June 2010
-
Back in the states..
I'm finally back. What was originally going to be a one month stay in Guangzhou, China ended up being a 9.5 week stay.
Update On The Medical Front
On my last post, I mentioned that the doctors were preparing to do a biopsy (below is a photo of my first biopsy.. after the stitches were removed) and then have assemble a team of doctors to review my case. After waiting a few weeks for the results, the tests did not yield anything useful. They decided to conduct another biopsy in nearly the same area, an EKG, and an MRI. Unfortunately I was unable to complete the MRI.
As you can see from the photo below, an MRI is where you lay on a slab and get slid into a machine. When laying on the slab, the nurse locks you down, and places something on your chest. I have difficulty breathing when I lay on my back. With the thing on my chest, I had a severe shortness of breath. I figured I could bare with it. The nurse informed me that there were 5 tests that needed to be done, and that it would take one hour. So it started. The machine started making noises, we were on our way. The machine then began expelling some heat. At that point, I couldn't breath, couldn't move, and started to sweat -- it became unbearable. After 5 minutes passed and the machine stopped, I figure first test was over and requested a breather. Not one test was completed! Unfortunately an hour would have been a tall order so we decided to call it off.
Prior to me departing, a couple doctors from Shanghai and Beijing convened with the doctors in Guangzhou to review my case. The doctors from the neuromuscular and rheumatology fields did not agree on each other's diagnosis hypotheses. The one disease the rheumatologists currently believe I might have is called Dermamyositis. Unfortunately one of my docs here in the US does not concur. The rollercoaster continues. Can anyone refer me to a real life Dr. House?
Medical Care in China vs. US
Despite the costs, and having to stay at a hospital for nearly the entire trip, I believe it was worth it. If given the chance I'd probably do it again. Though the medical care and technology in the US is known to be far superior to many other countries, IMO there seems to be too many roadblocks to getting the necessary tests done. For the 10 years that I've been dealing with my condition, the doctors could not come up with a definitive diagnosis... Over the past few years they haven't been doing many tests either... Not sure who is to blame.. Perhaps I had just gotten complacent, and figured they were doing their best, and not being proactive enough. Perhaps I've been a patient so long that they figure theres nothing new. All I know is that over the past few years, I've only been getting the occasional blood test.
The great thing about China is that... so long as you have the $$.. or even know someone, you can get things done. Theres no need for approval from insurance. Sure, you have to pay out of pocket, but the costs are a fraction of what it would cost in the US. Need a MRI? It can be scheduled within the next couple days. Need a biopsy? How's tomorrow for you? No need to wait weeks or months for an appointment. In all, the two months stay in the hospital cost about $13K USD, which included all the tests, and room fees (I got a private room too!). In the US, I'd hazard a guess that $13K wouldn't even cover 2 weeks for the room.
Memories
For the most part I have fond memories of my trip. I got to meet some very nice people. My dad's friends visited frequently bringing me huge baskets of fruit and flowers. The doctors and nurses were very attentive, friendly, and fun to talk to. Since I'm only able to read maybe 100 characters in Chinese, ordering food was a bit troublesome. They'd read the menu to me and help call the restaurant to place an order -- needless to say I would've died of hunger if it weren't for them! I'd spend lots of time chatting with them, forcing 'em to speak some English, and trying to make them laugh... For the people that had night-shifts, I made it a habit to stay up and talk to 'em. It certainly made my stay entertaining. Besides that, I spent most of my time in my room watching movies/tv shows, stealing wifi internet from one of the nearby residents to go on FB or play games (FB and Youtube are blocked in China, but managed to find ways around the Great Firewall of China). Below is a photo of my tearful goodbye..
Another thing that kept me sane is that I had a dear friend and co-worker visit me nearly every day. She'd bring me food, help me buy things, translate when needed, watch TV/movies with me, and keep me company. She was like my family over there.
For those of you on my FB friends list, you've likely already seen the rest of these photos.
First time sitting in 1st class. Couldn't sleep so I tried to make the most of it by eating as much possible.
Smoked Salmon & Caviar
Delicious crab cakes.. too bad they wouldn't let me order more.. Permits limited to one per 1st class passenger..?
Engrish
Beef brisket with "gwei lum mei fun" soup noodles. 7 RMB for a large with free delivery (no tip required). I ordered this once every other day!
Sashimi platter
Scorpion soup
Say hi to Kermit!
Some sort of cake/pastry with a scoop of vanilla ice cream on top
Shanghai Dumplings (Xiao Long Bao/Siu Long Bao) -- One of my two meals in Shanghai
At Shanghai International Airport.
Spicy chicken sandwich from McDonalds... McDonalds food taste so much better there!
Mangoes in China are HUGE.. Almost as huge as my big head.
This was an anteater... tasted a little like beef. Pretty yummy!
They told me this was an eagle. You can see the two eyes there..
Not much meat on these small crabs..
L-R: My dad, some famous Chinese guy, me
The guy is around 80-90 yrs old, and walks like the wind. He is very quick on his feet, energetic, and strong.
Bringing home a wife
One of the many ongoing jokes is that I'd go to China for a little while and bring back a wife. Some awkwardness during my trip ensued when my dad & friends attempted to set me up with a girl there. Prior to my arrival, they went to a city near Guangzhou to 'check out' some girls. Despite my protest I guess my dad feels a sense of urgency to get me hitched. After supposedly looking at 20+ girls, they all settled on one girl. The 4 of them were pretty forceful in making me talk to her, and had even invited her to a group dinner. My brother and sister-in-law, who were scheduled to depart Guangzhou the day before, decided to stay an extra day or two so that they can see her and share in the fun. We sat together at dinner and hardly spoke a word. She speaks primarily Mandarin, little English and Cantonese. I, on the other hand, speak English (obviously), Cantonese, and my Mandarin needs lots of work. They were talking about flying her parents in to meet me... Umm, what?? I was a tad bit peeved at the situation... but I'm glad that I can laugh about it now.
I *think* these might be the girls they checked out.. LOL
This is the girl they chose
Don't get me wrong, the idea of not having to work up the courage to talk to and ask a girl out is appealing... Especially considering my success rate, or lack thereof.. However, the constant pressure from my dad, and his friends made me resistant and downright pissed off. Having them there gawking and laughing was upsetting. Not being able to converse with her easily due to the language barrier was a bit troublesome. The long distance thing would be a pain... Add to the fact that I was only interested in going to China for medical treatment and didn't want this type of distraction. Ah well, whats done is done.
Thankful
I thank my lucky stars for all the love and support that I've received from my dear friends, family, and the strangers I share my story with. Thank you m dear Xanga readers that have been reading, giving me advice, and encouraging me. As you can tell from my previous posts, there are times when I do get down in the dumps. Its hard to avoid. But whenever I am down, theres someone there to pick me right back up, encourage me to keep on working and not give up. I'm thankful that I'm still able to walk, and live a relatively normal life.
Overcoming Jet Lag
So I've been back about two weeks now and am finally back to a reasonable sleep schedule. I've also been trying to adjust back to the clean air, water, and food -- have had a few upset stomachs... For about 1.5 weeks I was taking 3-6 hour naps, waking up at 3-7am. Waking up early all those days confirmed what I had always thought... I'm not a morning person. Perhaps the one good thing about waking up in the wee hours of the morning is that I can watch the sunrise...
How do you overcome jet lag? How long does it usually take?
Friday, 09 April 2010
-
... A trickle of hope?
Though this is bad news, I said I'd chronicle this so here it is! It appears my search for answers continues as the blood tests failed to cooperate not just once but twice! The Monday after my last post we received word from the hospital in Shanghai that the blood results appeared normal, while another person's test that my friend delivered to the hospital encountered problems. We didn't want to leave anything to chance so l hopped on a plane to Shanghai the next day to get my blood drawn in person (My lame joke was that I was the Transporter, and my cargo was my disease-infested blood). On Wednesday we received the results that confirmed the last test results, and my fears... That its unlikely that I have Pompe Disease. Deep inside, I'm still holding out some hope that it is as I believe that would be the best case scenario... The descriptions of the disease was pretty much on par to what I have been experiencing. (Side note: Coincidentally, Pompe Disease is actually the subject of the new Harrison Ford movie Extraordinary Measures.) When I was told of the possibility that it was Pompe, I began to dream... Dream about walking without fear of falling.. Dream about running on the beach... about leading a normal life.. Now its back to reality... This experience has been a huge letdown to say the least. I've been trying hard to temper my emotions but its been difficult. I've been told not to think too much into it.. How can I not? Now I must try to put on this face as if everything is ok when deep down I'm not feelin' it...
Anyhow... the quest continues. The doctors here are assembling to do a battery of tests. Since the failed result, on top of the IV, chinese herbal meds, soup prescription, exercise regiment, tui na (a form of pressure point massage therapy), shock therapy (not sure what the actual name of this test is... but maybe they think I'm crazy?), blood tests, and x-rays, they have just done a few additional blood tests, and added vitamins/pills to the mix. They plan to conduct a muscle biopsy on my leg (surgery to get a muscle sample), and cut out some skin to test on Tuesday. On Wednesday, they plan to gather doctors from nearly every department to examine my case. If they're unable to come up with something, I'm told leading doctors from around China may be asked to take a look at my case as well. Perhaps thats cause for some hope... but you'll have to excuse me if I'm a bit skeptical..
I guess I won't be coming back as soon as I had thought...
- browse entries:
- older »












Chatboard (7)